People with intellectual disability told us they often felt cut out of their own health appointments, as healthcare practitioners spoke to their support person or family instead of to them.
Receiving genetic health care can be a challenging, isolating experience for many people with intellectual disability. Meet the UNSW researchers who are trying to change that.
The research led by UNSW Sydney aims to make genetic tests and genetic counselling for people with intellectual disability more accessible and equitable.
Researchers have shown why people with intellectual disability experience lower life expectancy and suggest better public health could improve outcomes.
Australians with a disability are dying from avoidable deaths at twice the rate of the general population, and many deaths are attributed to the wrong cause.
